October update Posted by Posted by Linda Skates on 29 September 2017 Posted on: 29 September 2017

Posted by Linda Skates

Posted on: 29 September 2017

Hello I’m Sacha O’Dea,

I want to give you an update about what’s happening with System Transformation.

Firstly thank you to all of the people who have contacted us about being involved in a working group or a virtual testing group.  We’ve had a huge response from the sector.  We are still looking for some people to be involved in some working groups, particularly disabled people. As you will remember we have committed to having at least a third of the people on each working group being someone who identifies as a disabled person.

Some of the projects where we still have gaps are:

  • Network building
  • Market regulation and shaping
  • Interfaces with other government systems:
    • Education
    • The interface with Oranga Tamariki
    • Income support, employment and housing through the Ministry of Social Development
    • Whānau Ora
    • ACC
    • And finally but probably one of the bigger interfaces, with the rest of the health system.

To everybody who has contacted us, we will be contacting you to tell you about which working groups or virtual testing groups you are part of.  But it’s not too late - anybody can contact us at any time to bepart of a virtual testing group. Please email us at STfeedback@moh.govt.nz.There has been lots of work happening within the System Transformation space. Some of the highlights include:

  • The leadership group, based in the MidCentral region, met for the first time at the beginning of September
  • We have received feedback on some of our initial thinking about how people will enter the disability support system, from the Co-design group and the National Enabling Good Lives Leadership Group
  • The scope of funding working group has met several times and is now in a position to be able to test some of its thinking with other people
  • Some of the working groups have started  to meet including:
    • Capability building for disabled people and families working group
    • The Providers workgroup
    • The work on the high and complex framework
    • Equipment and Modifications


 The priorities for the next month are:

  • Confirming the working groups and communicating back to everybody around which working groups and which virtual testing groups you are on
  • Getting the working groups under way where they haven’t already started
  • Putting things in place for the virtual testing groups so that is making sure that we have got a way that you can engage that works for everybody out there and works for us and
  • Finally, we will be meeting with all of the groups that have a governance roll in the process. There is a governance group that has people from the National Enabling Good Lives Leadership Group and people from different government agencies including the Ministry of Health, Ministry of Social Development, Ministry of Education, Ministry of Vulnerable Children and ACC.
  • We will also be meeting with the National Enabling Good Lives Leadership Group, the Regional Leadership Group based in MidCentral and the Co-Design Group.

We look forward to working with you as part of the working groups and through the virtual testing groups.




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By Donna Eaglesome (12 months ago)
I would be interested in finding out more about participation in this project. Through family experience, my particular interest would be in the Family working group and/or Equipment & Modifications.

By Jeannette Mackenzie (12 months ago)
I am the Mother of a 26 year old disabled son. We currently receive the FFC and would be interested in taking part in some discussions around any changes to this system. My husband is our son's carer and would be the one to talk about our experiences/concerns etc around changes to the Family Funded Care. thanks

By June Rameka (12 months ago)
I am a Mother with a Daughter who has Intellectual Disabilities - Severe Autism & Bipolar. She is now 34 years old. What is this group about please.

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