September update Posted by Posted by Linda Skates on 31 August 2017 Posted on: 31 August 2017

Posted by Linda Skates

Posted on: 31 August 2017

Hello, I’m Sacha O’Dea.

I just wanted to give you an update about the System Transformation work programme to develop a new disability support system.

The last time that I communicated to the sector, we were at the point that we had developed a high-level design for the new system and we were waiting for it to go to Cabinet.

In July, on the 20^th July, the Ministers released the high-level design and now we’re at the point that we’re doing more work to develop the detailed design in order to be ready to roll out the new disability support system in MidCentral from the 1st July 2018.

Working groups

At this stage, we are looking for people to be involved in the detailed design on working groups or in virtual testing groups.

On a working group we bring together people who can co-design with us face to face, exactly how it will work in practise. So we’ve got a high-level framework and now we’re trying to think, how will it actually work on the ground.

For each of the working groups, we want to have at least a third disabled people so people who are there because they bring their lived experience and their own experience of what life is like with a disability.

We also want to have, at the very most, a third of the people on the working group who come from government agencies, and the balance will be made up from other people in the disability sector, including whānau representatives, providers, academics.

The working groups will take about three to five days, face to face, over the next three months.

Virtual testing groups

We also want to give an opportunity for lots more people across the disability sector to be involved in developing the detailed design so we’re also creating virtual testing groups.

Anybody can be involved in those and we will make the opportunity for people to provide feedback at the beginning of the process and as we develop it.

This will be through things like social media or email or using tools like Loomio.

We’re going to put up information about all of the different projects within the work programme and a description of what’s in each.

Please go and have a look on www.enablinggoodlives.co.nz and see which ones you’re interested in.

People can only be involved with, at a maximum, three working groups but you can be involved in as many virtual testing groups as you’d like.

We particularly encourage disabled people to apply because we’re looking for a range of disabled people to be involved in each of the work streams.

Sacha O'Dea,

Programme Lead, System Transformation

WORK STREAMS

1. GETTING READY FOR MIDCENTRAL

Project	Description
Disability Information front end	Development of the front-end of the new disability system including digital hub, email, phone and face-to-face interaction, peer networks, pro-active outreach and contact for the MidCentral prototype.
Capability building disabled people and family	Development of the funding mechanism and decision processes for allocating funding for disabled people and whānau capability and capacity building.
Information tool/ pathways and processes	Development of the end to end pathways, processes and tools for the MidCentral prototype.
Network building options	Development of the options and supporting processes to support connectors to expand networks for disabled people and whānau. This continuum includes formal advocacy and substituted decision making.
Funding	Development of the funding allocation processes and tools for the MidCentral prototype.
System responsiveness	Development of the processes and tools for collecting and monitoring information and insights, and making recommendations for system enhancements for the MidCentral prototype.
EGL team and system capability including infrastructure and fleet	Development of the team to support the new system including role descriptions, recruitment, induction and training, hours, caseloads, management and supporting roles. This work stream also looks at where and how we want people to work including supporting technology for MidCentral prototype.
Provider analysis and capability, and implications for contracts	Understanding the provider landscape in MidCentral and building capability for the MidCentral prototype.
Detailed design of interface with government systems Health ACC Care and Protection Education Income Support, Employment and housing Whānau Ora	Developing mechanisms to enable disabled people and whānau to have a seamless experience with other government systems. This includes processes for the MidCentral prototype.

2. POLICY AND OPERATIONAL

Project	Description
Scope of funding	Identifying what disability support funding will come into the disability support system, what will be purchased centrally and what will go into personal budgets. This will also include identifying contracting and legislative changes that will required and making recommendations on timing.
High and complex framework	Understanding how the new system will work for high and complex clients and identifying any legislative or policy changes.
Safeguarding arrangements	Ensuring that we have integrated a safeguarding approach into every aspect of the new disability support system.
Social investment	Developing social investment approaches that will be integrated into the funding allocation model for the MidCentral prototype.
Market shaping and regulation (incl. new models)	Understanding the current market and regulation, identifying what we need to put in place to support new models, assessing whether any change is required to the regulatory environment, and understanding and managing any risks about existing services where they meet the needs of disabled people and whānau.
Equipment and modifications	Understanding how equipment and modification will be managed within the new disability support system.
Tax policy	Policy work to ensure appropriate tax treatment of disability support and address issues identified in the two demonstrations.
Brand and identity	Creating a brand for the new disability support system to ensure all New Zealanders know where to go to get disability support.
Deep dive for Māori	Understanding the diversity of experience for Māori disabled people and whānau and identifying implications for the detailed design to ensure we can meet the needs of Māori.

3. EVALUATION

Project	Description
Quality of life framework	Understanding existing approaches for measuring quality of life and agreeing a framework for gathering information and measuring quality of life for disabled people and whānau. We want to build on existing approaches and align it with wellbeing indicators across government.
Baseline data gathering	Gathering baseline data about current experience of disabled people, families and providers, and effectiveness of system in MidCentral prior to the roll out.
Outcomes framework	Developing an outcomes framework for the new disability support system.
Monitoring plan and approach	Developing an approach and plan for monitoring progress as the prototype is rolled out.
Evaluation plan and approach	Developing an approach and plan for the evaluation of System Transformation.

If you are interested in contributing to the detailed design of any of the work streams outlined above, please get in contact with the team: STfeedback@moh.govt.nz.

Please state which project you would like to be part of and your involvement in the disability sector.

We look forward to working with you in the next stage of the work programme.

Editor's note 04/09: If you would like to be involved in a working group, please let us know as soon as possible. You can indicate your interest by contacting us at STfeedback@moh.govt.nz. You can join viritual testing groups, which are yet to be set up, at any time.

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Comments

By Geraldine (Dina) Whatnell (7 years ago)

Hi I am really interested in being involved in the working groups, I am not sure which one I will be of greater benefit too? In a professional capacity I am the clinical nurse specialist lead developmental disabilities at Palmerston North Hospital; in a personal capacity I am a sister of a wonderful gentleman who has Down syndrome. I am very involved in the NZ Down syndrome association and Special Olympics. Geraldine

By Diane Moody (7 years ago)

Dear Sacha As Someone who has unequivocally suffered under the current regime (approximately 20yrs) I would like to take part in the group(s) cited below.

By Linda Skates (7 years ago)

Hi Lisa and Raewyn, the STfeedback address has been tested and appears to be working. The team administrator will send you an email to find out your interest in the work streams.

By Lisa Willey (7 years ago)

I also have attempted to email to the stfeedback@moh.govt.nz address to express an interest in participating in some of these work streams and have had the "bounce back" - I have not been able to find an alternate contact. I'd be pleased to hear from you on the email address I have submitted with this comment

By Raewyn Hailes (7 years ago)

STfeedback@moh.govt.nz. says no longer a valid email address

By Claire Stewart (7 years ago)

In workstream 1 - network building options what is meant by 'formal advocacy' and 'substituted decision making'? Why wasn't supported decision making used?

By Tina Mataiti (7 years ago)

I'm a carer for my husband with a spinal injury Tetraplegic c4,c5 break. I'm very interested in participating in this working group. I love the idea of online input from people who are unable to attend meetings /workshops. Persons centred goals/dreams with the right people around to support to live independently. My passion is to champion the Rights of pacific peoples with disabilities, their carers and families.

By Tony (7 years ago)

At last the heath system is waking up to what the disable people have been looking for the past twenty years. Having CP for 72 years and been part of the disability groups , it is about time the health system took notice of us . Are interested in being on a group. Tony

By Ginny walker (7 years ago)

Hi solo mum of 24 yr old son with autism, clusters of seizures with brain damage and non verbal sometimes needing 24/7 support to live in his own flat in hawkes bay. We have Talklink equipment and training on 6 Sept 17 after 2 years of waiting. Have 6 years experience in using IF Funding and now got individual VHN funding due no provider/organisation willing to help us due to high complex health needs. I've spend many years attending different meetings on changes to disabilities services so looking forward to more input from small town plus have lived in Wellington region. I like idea of online input from people who are unable to attend meetings /workshops. Persons centred goals/dreams with right people around to support to live independently.

By Bobbie Chadderton (7 years ago)

Hi, I am a parent of a 20yr old with autism and other complex needs as well as a teacher for young adults with disabilities who are enrolled in a special school and attend a community based facility. The community is our classroom. We are in Auckland. I'd like to be part of a team and my students would also like the opportunity to have a voice, particularly given the different needs our people may have in such a diverse and demographically wide spread city. Regards Bobbie

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